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Blood Disorders

Hemophilia and Thrombosis Center

Founded in 1977, the Pediatric Hemophilia and Thrombosis Center was one of the nation's first programs for children and families affected by hemophilia and other congenital blood clotting disorders (those present from birth). We provide our patients and their families with a full range of services, including diagnosis, treatment, genetic screening, counseling and education.

Our complete approach to care for both adult and pediatric patients has gained us recognition from the Centers for Disease Control and Prevention (CDC) as a comprehensive hemophilia treatment center. We are also part of the Western States Regional Hemophilia Network, which promotes collaboration among hemophilia centers in California and neighboring states. Our research has contributed to advances in treating complications of the disease.

Hemophilia is a genetic disorder that prevents blood from clotting properly. A child with the disease lacks blood proteins called clotting factors that help stop or control bleeding. We provide advanced care for hemophilia A and B (also called factor VIII and factor IX deficiency, respectively).

Our center also offers care for other coagulation factor deficiencies, von Willebrand disease, congenital platelet disorders and related blood conditions. When patients seek evaluation for bleeding problems, we collaborate with the UCSF Hereditary Hemorrhagic Telangiectasia (HHT) Center to help ensure an accurate diagnosis. (HHT is one of the more common inherited bleeding disorders.) We also offer prenatal consultations to families with heritable bleeding disorders, as well as consultations for abnormal uterine bleeding or other hormonal concerns related to gender transition.

Young children and adolescents with thrombotic (clotting) disorders, including deep vein thrombosis, arterial thrombosis and pulmonary embolism, can also receive expert care at our center. We help these patients navigate anticoagulation therapy, medications that prevent dangerous blood clots.

Because clotting and bleeding disorders can affect many aspects of a child's life, our team includes experts from multiple specialties. Our patients receive care not only from hematologists (blood specialists) but from nurse practitioners and nurses, social workers, physical therapists and orthopedic surgeons. We develop individualized treatment plans for patients and families and provide opportunities to participate in clinical trials (studies to evaluate promising new therapies).

We also have an extensive patient education program, as well as partnerships with community support groups, to help patients and their families manage their own health, including by learning to administer infusion treatments at home.

Our locations (2)

    Our team

    Awards & recognition

    • Ranked among the nation's best in 11 specialties

    Related conditions

    Plan your visit

    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your child's condition
    • List of medications, including dosages, plus any your child is allergic to
    • List of questions you may have
    • Device or paper for taking notes
    • Completed medical forms that we will mail to you ahead of time

    For visitors

    Before you head to the hospital, check out our guidelines for visitors and caregivers.

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    Your Stay

    We offer valuable information to help you plan for your child's upcoming hospital stay. Find out about food services, family accommodations and more.

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    Your Child's Care Team

    Our doctors, nurses, child life specialists and other providers have special training to care for children. Meet your child's care team.

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

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    Related clinics (5)

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    Apheresis Program

    Apheresis Program

    747 52nd St.
    Oakland, CA 94609

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    Hematology Clinic

    Hematology Clinic

    San Francisco / Fresno / Greenbrae / Oakland / Santa Rosa / Walnut Creek
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    Hemoglobinopathy Lab

    Hemoglobinopathy Lab

    747 52nd St.
    Oakland, CA 94609

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    Infusion Center

    Infusion Center

    San Francisco / Oakland / Walnut Creek
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    Survivorship Program

    Survivorship Program

    Oakland / San Francisco
    Decorative Caduceus

    ATHN Transcends: A Natural History Study of Non-Neoplastic Hematologic Disorders

    Safety will be measured by those events in the European Safety Surveillance (EUHASS). 1. Allergic or other acute events 2. Treatment-emergent side effects of therapy 3. Transfusion transmitted infections 4. Inhibitor d...

    Recruiting

    More about this study
    See all clinical trials

    Support services

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    Child Life Services

    Activity rooms, pet therapy and more to help kids feel at home.

    Child Life

    Certified child life specialists ease the stress and anxiety of childhood illness through therapeutic play, schooling and family-focused support.

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    Hemophilia Support Network

    The hemophilia support network gives parents a chance to learn from each other and discuss important issues affecting children with this blood disorder.

    Family Amenities

    Family-friendly amenities help you relax and take care of yourself while staying close to your child. We offer lounges, kitchens, showers, breastfeeding rooms and more.

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    Social Services

    Social workers ease the effect of illness, injury and hospitalization on your family with counseling and assistance to help you navigate the challenges.

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    Activity Rooms

    Activity rooms offer a relaxed environment for children of all ages. Features include a playroom, digital arts studio and teen lounge. Find out more.

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    Art Therapy

    Art therapy helps kids and families express themselves, making it easier to cope with pediatric health issues. Group and bedside services are available.

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    Music Therapy Program

    Board-certified music therapists help kids cope with illness and the feelings that come with it. Find out about group activities and bedside therapy.

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    School Program

    Our schoolroom services and individual learning programs help children hospitalized at UCSF continue their education and get ready to return to school.

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    School Re-Entry Program

    We help kids return to school after hospitalization by educating staff and students about their needs and recommending needed accommodations. Read more.

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    Individual Playtime & Instruction

    If your child can't be around other kids for medical reasons, you can sign up for private sessions in our activity and school rooms. Find out how.

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

    Family Resource Center

    We help families cope with the challenges of childhood illness and hospitalization in a relaxing environment where parents can get a much-needed break.

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    Parent Support Program

    Weekly activities, including knitting, scrapbooking, chair massage and more, help family caregivers get a much-needed break. Find out more.

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    Patient Relations

    Patient relations reps and nursing supervisors are here to answer questions and address concerns. Learn about your rights, how to reach us and more.

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    Spiritual Care

    Chaplains help UCSF patients, families and staff cope with the spiritual and emotional challenges of childhood illness. Learn more.

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    International Services

    If you're coming to UCSF from outside the U.S., we coordinate your child's appointments and provide other helpful services. Here's how to get started.

    Fetal surgery firsts

    The first open fetal surgery in the world was performed at UCSF in the early 1980s.

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