Pediatric Brain CenterRadiology

Hereditary Hemorrhagic Telangiectasia (HHT) Center

(415) 353-8867

The Pediatric Hereditary Hemorrhagic Telangiectasia (HHT) Center specializes in caring for patients with HHT, a genetic disorder that causes blood vessels to develop abnormally. We have been designated a Center of Excellence by Cure HHT, the leading organization for HHT research funding, education and patient advocacy.

HHT can affect blood vessels in many parts of the body from the skin to the liver to the brain, so our care team is made up of many different medical specialists. Depending on the symptoms, your child may be seen by experts in interventional and neurointerventional radiology, pediatrics, medical genetics, hematology, otolaryngology – head and neck surgery, cardiology, dermatology, gastroenterology, neurology, neurological surgery or pulmonology.

We trace each patient's family history of HHT and work closely with referring doctors to develop a treatment plan to address the child's symptoms and complications of HHT. We offer advanced screening and diagnostic tests for serious complications, such as arteriovenous malformations, abnormal tangles of arteries and veins in the brain. We are able to treat many complications through minimally invasive surgery.

Our clinic is associated with the Center for Cerebrovascular Research (CCR), which focuses on vascular malformations of the brain. CCR has a special interest in HHT, one of the few inherited causes of arteriovenous malformations. The neurointerventional radiologists on our team pioneered many of the procedures and devices used to treat arteriovenous malformations.

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    Our team

    Awards & recognition

    • Ranked among the nation's best in 11 specialties

    • One of the nation's best for neurology & neurosurgery

    • in NIH funding among U.S. neurology programs

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    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your child's condition
    • List of medications, including dosages, plus any your child is allergic to
    • List of questions you may have
    • Device or paper for taking notes

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    Your Stay

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    Your Child's Care Team

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    Interpreter Services & Communication Assistance

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    Art Therapy

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    School Re-Entry Program

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    Individual Playtime & Instruction

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    Interpreter Services & Communication Assistance

    Interpreter services in many languages and TDDs are available for families that need help communicating with care teams. Here's how to access them.

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    Parent Support Program

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    Spiritual Care

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    International Services

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