Rett Syndrome Clinic
Katie's Clinic for Rett Syndrome is one of the few centers in the United States to offer comprehensive care for patients with Rett syndrome, a rare and debilitating neurological disorder diagnosed almost exclusively in girls. The condition affects one of every 10,000 female newborns in the United States.
Rett syndrome can cause a variety of health problems, including seizures, sleep and breathing disturbances, behavioral issues, motor disabilities and communication challenges. That's why our clinic takes a team approach to patient care. Initial evaluation and ongoing treatment are led by a developmental-behavioral pediatrician, a pediatric neurologist and a pediatric nurse practitioner. A patient's care team may also include specialists in medical genetics, orthopedics, gastroenterology, physical or occupational therapy, speech therapy and nutrition. Together, we ensure that each patient receives the highest-quality care, designed just for her needs.
While there's no cure for Rett syndrome, we can do a great deal to enhance quality of life for the girls and young women who have it, and to support their families. UCSF is also involved in research to improve understanding of the condition, so that we can design cutting-edge management strategies for our patients.
The International Rett Syndrome Foundation has designated our clinic a Rett Syndrome Center of Excellence. This award recognizes our team's dedication to providing best-in-class care for people with Rett syndrome.
Our locations (1)
Awards & recognition
-
Ranked among the nation's best in 11 specialties
-
One of the nation's best for neurology & neurosurgery
-
Designated a Center of Excellence for Rett syndrome
Plan your visit
What to Bring
- Photo I.D.
- Health insurance card
- Insurance authorization, if required
- Doctor's referral, if required
- Recent test results related to your child's condition
- List of medications, including dosages, plus any your child is allergic to
- List of questions you may have
- Device or paper for taking notes
Support services
Tender wagging care
Our therapy dogs spread joy and smiles at the bedside and throughout the hospital.
Visit Child Life services