PulmonologyEar, Nose and Throat

Primary Ciliary Dyskinesia (PCD) Center

UCSF's Pediatric Primary Ciliary Dyskinesia (PCD) Center specializes in caring for children born with this rare lung disorder. We offer screening and diagnosis for children of any age as well as comprehensive treatment plans aimed at slowing the disease's progression and supporting patients' normal growth and development. We work closely with families to help them integrate even the most complex therapeutic regimens into daily life.

Our program is certified for primary ciliary dyskinesia care both nationally, by the PCD Foundation, and at the state level, by California Children's Services.

What is PCD?

PCD is a rare genetic condition that affects hair cells known as cilia in the lungs and sinuses. Usually, cilia beat together to move naturally produced mucus along the airways. In people with PCD, the cilia can't move normally, so the airways become clogged with mucus and bacteria, leading to lung infections and lung damage, recurrent ear infections, and sinus infections. People with PCD typically have a chronic cough and nasal congestion starting in infancy. Some people have organs on the opposite side of the body – a condition known as situs inversus or heterotaxy. PCD affects people of all races and ethnicities.

Why choose us?

  • Our comprehensive care integrates services from a dedicated team that includes pulmonologists, otolaryngologists, genetic specialists, pediatric dietitians, social workers, audiologists and respiratory therapists.
  • We offer exhaled nitric oxide testing for children and adults.
  • UCSF is nationally known as a multicenter research site for advanced pulmonary studies.
  • We're part of the PCD Foundation Clinical and Research Centers Network (PCDF-CRCN), which is expanding access to high-quality care for patients with the disease.
  • Through collaboration with the PCDF-CRCN, we offer patients access to clinical trials evaluating promising new PCD therapies.
  • Our program is accredited by the PCD Foundation and certified by California Children's Services.

Our locations (2)

    Conditions we treat

    • Bronchiectasis

    • Primary ciliary dyskinesia

    Our team

    Awards & recognition

    • Ranked among the nation's best in 11 specialties

    • One of the nation's best for pulmonology & lung surgery

    Plan your visit

    Preparing for your appointment

    What to Bring

    • Photo I.D.
    • Health insurance card
    • Insurance authorization, if required
    • Doctor's referral, if required
    • Recent test results related to your child's condition
    • List of medications, including dosages, plus any your child is allergic to
    • List of questions you may have
    • Device or paper for taking notes

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